General Cancer and Feelings Materials

For Young Siblings:

  • “Hi! My Name is Jack” by Christina Beall-Sullivan
  • “Oliver’s Story” by Michael Dodd / Candlelighters
  • “Life Isn’t Always A Day At The Beach”  by Pam Ganz
  • “Discovery to Recovery- Child’s Guide to Bone Marrow Transplant” (DVD/Booklet)  National Marrow Donor Program
  • “A Day With Dr. Waddle” by Center for Basic Cancer Research
  • “What is Cancer, Anyway? Explaining Cancer to Children of All Ages” by Karen Carney
  • “Chemo Crusader and the Cancer Fighting Crew” by Melodie Homer
  • “Little Tree; A Story for Children With Serious Medical Problems” by Joyce C. Mills

For Teen Siblings:

  • “Drums, Girls and Dangerous Pie” (for teens and adults) by Jordan Sonnenblick
  • “When Your Brother or Sister Has Cancer: A Guide for Teens”  National Cancer Institute
  • “Hey, What About Me?” (journal for teen sibs) by Pam Ganz for SuperSibs!
  • “Kathy’s Hats; A Story of Hope” by Trudie Krishner and Nadine Westcott
  • “Kids Tell Kids What It’s Like to Have a Brother / Sister With Cancer” (video) CancerVive

For Parents:

  • “Caregiver’s Guide for Bone Marrow/Stem Cell Transplant; Practical Perspectives” -- www.nbmtlink.org
  • “Childhood Cancer” (Section on Helping Siblings Cope) by Honna Janes-Hodder & Nancy Keene
  • “Parent Guide for Siblings of Children With Cancer” download from SuperSibs! website

Bereavement Materials

For Young Siblings:

  • “The Empty Place” by Roberta Temes, New Horizon Press
  • “When Someone Very Special Dies” by Marge Heegaard, Woodland Press

For Teen Siblings:

  • “Facing Change” by Donna O’Toole, Compassion Press
  • “A Child Remembers” by Enid Samuel-Traisman, Centering Coorporation

For Parents:

  • “Sibling Grief” by Marcia Scherago, Medic Publishing Co.
  • “Helping Children Grieve & Grow” by Donna O’Toole with Jerre Cory, Compassion Press

Here’s What You Can Do

  • Refer siblings of children with cancer to SuperSibs!  
  • www.supersibs.org 866-444-SIBS (7427)
  • Please note: Once a SuperSib, always a SuperSib!   Bereaved children continue to receive our support, as well.  Please ensure that we are notified so we can send appropriate SuperSibs! materials.
  • National Sibling Day is April 10 every year. Celebrate that day with a special event or gathering with the siblings of your pediatric oncology patients.
  • Sometimes it’s the “We’re doing great!” families that need the most sibling support.
  • Host periodic sibling gatherings (SibWeek or Sibling Days), if not possible on April 10.
  • Offer in-hospital school / tutoring for siblings
  • Create “SibSpot” Sibling Bulletin Boards
  • Display SuperSibs! Frame A Feelin’ Magnets to help communicate feelings
  • Make “I’m Thumbody Special” posters
  • Have volunteers make Smilecards for siblings
  • Designate a day for “Sibling’s Choice” Mealtime Menus
  • Sibling Forum – 1x month, gather siblings, ask their input and ideas and then LISTEN!
  • Have a Sibling Suggestion box
  • Have parents write special letters to their other children at home and YOU mail them from the hospital!
  • Use Guided Imagery to help siblings relax and release stress
  • SIBLING WORKSHOPS – SuperSibs!/Sibshops
  • Call siblings (and parents) by their own name
  • Ask siblings how THEY are!
  • Speak to younger children at their eye level
  • Have joke books – it’s wonderful to help them smile!
  • Provide a Family Journal
  • Ensure there’s a teen area (not pre-school chairs and crayons only)
  • Provide “Super Sibling” badges
  • Have a SibScenes window decoration day
  • Provide a resource library for parents and children / post flyers of helpful organizations and/or events
  • Remind High School Senior siblings of children with cancer to apply for a  SuperSibs! College Scholarship.  (Applications received December-March each year)
  • Provide access to computers for siblings to use in clinic and waiting rooms.
  • Have a Sibling Journal or Guest Book in the waiting room, for siblings to write advice or thoughts to other siblings (encourage first names only).

When a child has cancer, everyone in the family needs healing.

Thank YOU for providing love, care and hope to the “shadow survivors” – the siblings of children with cancer.

Tips for Talking with Children About Cancer ( www.wondersandworries.org/coping.htm )

Melissa Hicks, MS, CCLS, LPC, RPT
Child Life Specialist
President Child Life Council
Co-Founder, Wonders and Worries (wondersandworries.org)

SuperSibs! Parent Guide download

MyLion.org
www.MyLion.org
1-937-767-1924

"Our mission is childhood cancer. It's a tough journey for families and children, but you can help."

Resources

The Sibling Support Project
www.thearc.org/siblingsupport
(206) 297-6368

Providing peer support and education opportunities for brothers and sisters of people with special health and developmental needs.
Gilda’s Club / Noogieland
www.gildasclub.org

1-888-GILDA-4-U

A special place for siblings and children of children of all ages.
Cancer Camps
www.coca-intl.org

Many camps for children with cancer also offer “sibling sessions”. Inquire about those offered in your area. Encourage your local “cancer camps” to offer sibling sessions. Check out www.coca-intl.org to find camps with sibling programs in your area.
CancerCare
www.cancercare.org

Online support group bulletin boards. Monitored and mediated by CancerCare professionals.
Rainbows
www.rainbows.org

Support for siblings experiencing grief and loss.
Children’s Cancer Association
www.childrenscancerassociation.org

Support, information and advocacy for children and families facing pediatric cancer.
American Psychological Oncology Society
www.apos-society.org
1-866-APOS-4-HELP (1-866-276-7443)

The American Psychosocial Oncology Society (APOS) has a toll-free Helpline for people with cancer and their caregivers to obtain a local referral for counseling and other support services to manage cancer-related distress.

 

Additional Resources

Association of Pediatric Oncology
Social Workers

www.aposw.org
Association of Pediatric Oncology Nurses
www.apon.org
Child Life Council
www.childlife.org
Candlelighters Childhood Cancer Foundation
www.candlelighters.org
Bear Necessities Children’s Cancer Foundation
www.bearnecessities.org
Ronald McDonald Children’s Charities
www.rmhc.org
CureSearch / National Childhood Cancer
Foundation / COG
www.curesearch.org
National Marrow Donor Program
www.marrow.org
Starlight Starbright Children’s Foundation
www.starlight.org
Leukemia and Lymphoma Society
www.leukemia-lymphoma.org
American Cancer Society
www.cancer.org
Lance Armstrong Foundation
www.livestrong.org
News & Events
The Sib Spot


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